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Zak’s Incredible Journey

Zak’s Incredible Journey

Today as we celebrate Zak’s 3rd birthday it’s amazing to think how much he has progressed these last 6 months. When he was born he was a month premature although its not a lot it did make a difference to how he progressed. Zak was diagnosed with autism, severe global delay development, chromosome disorder of gene 16p 11.2 microduplication, Macrocephaly (is a neurodevelopmental disorder where the head is 2 sizes or over than an average size head). Yet despite all this he amazes me each day.

Up to 2 years old Zak was unable to do anything and just used to lie there so quiet, so still. There was a point when we had to prepare for him not being able to sit up due to low muscle tone, but he proved them wrong. After hours of physio exercises Zak began to sit up. Not only that he sat up with no support. After a while his muscle tone began to improve as he began crawling. It was certainly a sight I thought would never happen. Zak was determind not to let anything beat him.

These last few weeks have seen Zak develop. He has gone from almost being non vocal to last night he instigated a game. He was rolling a ball and he said

Come on Muma ball

As he sat down and patted the floor for me to join in. We sat and played this game for a good 10 minutes which in itself is a miracle as Zak has very little concentration levels.

The best surprise of all is Zak’s natural ability to play the glockenspiel I mean who knew he could play it. Father Christmas brought him a small glockenspiel for Christmas which he loved and plays for hours with. For his birthday he has a his own glockenspiel that he absolutely loves.

For me as I sit here and think of Zak’s incredible journey I marvel in this little boy who has come so far. So Happy Birthday Zak hope you have a wonderful day. I can’t wait to see where your incredible journey will take you next.

Zak A Week Old

Zak’s 3rd Birthday

About Wendy

I am a X-box gamer, film lover , blogger, reviewer, a stroke survivor, loves tea and camping. Mum to 4, 3 of whom have autism.

24 comments

  1. Happy Birthday Zack. Just keep on the path you are on… You will make it… :)

  2. Happy Birthday Zak, may you continue to amaze everyone xxx
    Anne recently posted..Reminiscing and Resolutions.My Profile

  3. happy birthday zack may strengthen you and keep you have a blessed day God is with you all the way

  4. Hi Wendy, So please to read the Zak is making some great gains in his development. I do want you to check your information though and this is quote from Wikipedia but also my own knowledge – Microcephaly is a neurodevelopmental disorder in which the circumference of the head is more than two standard deviations smaller than average for the person’s age and sex. Whereas Macrocephaly is customarily diagnosed if head circumference is greater than two standard deviations (SDs) above the mean. From your description of Zak’s large head it sounds like he has the macro and not micro.
    Kind regards

  5. Happy Birthday Zak. He is such a wonderful, special little boy. You must be SO proud of him.
    @mummiafelice recently posted..A Quick & Easy Gratitude Jar for ChildrenMy Profile

  6. Happy Birthday to your lovely boy!! :)
    Notmyyearoff recently posted..Project 52 – Week 1 / Silent SundayMy Profile

  7. Pleased to read how much wonderful progress Zak has made. Best Wishes to you all.

  8. Happy Birthday big boy … you are making your Mummy and Daddy so proud every day as you learn more and more. :D

  9. Happy birthday Zak! We are all so proud of you and look forward to finding out what “boundaries” you are going to smash through next. You are a wee star!!! Keep going!xx

  10. Happy birthday to one gorgeous and incredible little boy. xxx
    Susan Mann recently posted..Christmas, Birthdays, The Holidays & Happy New YearMy Profile

  11. Awww this was my little boy’s 3rd birthday also. Sam x

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