I want to tell you about my oldest son Luke. Luke is 8 years old and has autism plus a rare chromosome disorder. The gene disorder is a micro duplication of Gene 16p 11.2, this affects the way the Luke learns and takes information in. There’s not a lot known about this gene so more research is being done on it.
Luke started off life as a normal baby making all the gurgling noises, saying mama, dada etc. Then one day he woke up and didn’t say a word, instead of talking he screamed. From early morning to late at night he screamed, nothing would pacify him, he wouldn’t sleep, he wouldn’t eat any of the foods he had previously loved. He just use to sit screaming, staring at the void in front of him. He wouldn’t stop if I called his name. It’s like he was in a trance, daydream but never snapped out of it.
As days rolled on he started to take an interest in cars. He would never play with them just line them up, he would even get down on the ground so he could see they were perfectly aligned. It was during this stage we got the diagnosis that he was in fact autistic and all these things were in fact his traits.
He was enrolled for a special school as it was deemed he would never manage a main stream school. He started school at nearly 5 years old not being able to speak. After extensive work with the school and regular sessions with a speech and language specialist. Luke uttered his first words on Christmas day when he said
This was the most incredible day and one that I will never forget. It was like winning the lottery, my little boy had spoken.
He soon started to develop new skills virtually day by day, he learning pattern is very unique as he can have a massive development spurt and then plateau for ages. This is all down to the Chromosomal disorder of Gene 16p 11.2
Despite all this and his autism he is doing incredibly well at school. He has even moved up to his Junior special school a year early and excelling. This is way above any expectations I ever thought possible. Do you know the best part of it all he comes and tells me all about his day. I do mean all from start of school to the end of the day. Its amazing as I thought he would never talk again.
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